Nobody said it would be easy…

MS mobility and staying positive

I was rather shocked , disappointed in myself to see I last posted in September….I must admit it’s not due to writers block…rather lets just say blocked writer !

The hands decided not to really cooperate …more like type 5 lines then freeze….repeat. Motivation wise that and the state of the world over the past months has left me feeling decidedly unmotivated.

Music, the furbabies and the birds have filled my days fueled by good coffee and … no that’s about it !

Health wise, the MRI’s of last, last year (2019 !) , seems strange getting feedback a year later ….showed fairly extensive lesions at the spinal column, not good according to the neurologist but that does at least explain the incessant discomfort and difficulty coordinating hands and limbs.

It could always be worse.

There is however nothing to treat it , no miracle cure , no diet or special herbs, no exercise that will help repair…call it cable theft !

The past few mornings I have been awake at 3am to 4am with the nerve endings signaling wildly that my feet have ignited. That rather rude awakening has allowed me to catch up on my podcasts on galaxy formation, black holes and quantum mechanics …why indeed you may ask….just because 😊

In fact the trigger was most likely some of the Stoic anecdotes I had been following until around November last year , after which even those failed to excite me. Don’t even mention the News networks trying to attract everyone to hear their story…

If I have to complain…we have had no clear skies at night since my telescope was delivered last November ….call it the astronomers curse.

I am waiting in anticipation…others however did witness the conjunction of Saturn and Jupiter…just not me .

Getting back on track.

This particular one strikes a chord with me …I apologise already …there were a great many that I simply needed to share…Sorry !

Rather sobering.

Of course, I have no clue of how vast 4 million light years looks like , let alone a billion dollars

( Although I’m willing to help distribute that to people in need … Just saying… Jeff ….Elon…?)

So…whilst lying awake in the early hours …alone with Alexa …formulating what I wanted to share , listening to experts talking about what we think we know about black holes ….

I realised that I was harboring far too many thoughts, trust the Daily Stoic to have just the anecdote.

Albeit not entirely true , your health is something you do contribute to, I recall fondly my life of sports and relatively healthy lifestyle which for all its merits have still seen my health hobbled by this scourge that is MS.

Fortunately I have few regrets to throw shade at me.

All is not doom and gloom however …2020 came and went and Yes , Things could be better , a lot of people around the world have been sick , have died , have suffered but …..Life is to be lived and hardships come along with the good times.

Music wise this last year has not been kind, two of my music producing friends have succumbed over the year, my contact list seems to be slowly filling up with the names of friends I will never hear again, their music contributions still fill the house though.

Today…still with us …Franco, take it away.

Big shoutout to Gil Scott-Heron…DJ Vadim !

Last Stoic-cy anecdote for this day ….

Part cause of my “self-exile” has been the constant barrage of social media on everything from Anarchist Trumpist’s to ….Zombie viruses .

I thought it best to escape all of that and stick to the simple things that make me smile, my furry family and the resident birds.

Oh yeah…they have a new apartment block that is waiting sealing and an energetic landlord …that’s me I’m afraid.

I’ve stolen this last snippet from a post I follow called “the Grief Reality”. It’s something we all have the ability to observe…a simple list but oh….so dear to my heart , especially #1 😊

Of course closely followed by 10,11,12,13,14…..

The things that make Life beautiful 😊

Time for that Coffee, Just the way I like it !

Be safe , Be aware, Be well

Published by Daniel Taylor

MS Warrior with an affinity for 80's New Wave music and deep philosophical ramblings...and coffee , definitely coffee

5 thoughts on “Nobody said it would be easy…

  1. “You’re just one person among many doing your best among many. That’s all you need to do” I think thats really important to remember, thank you for sharing 🙂

    I hope you enjoyed your coffee!


  2. Welcome back Daniel. Definitely been a long time since your last post. I liked the list of what makes life beautiful at the end of your post. I agree with probably all of them 🙂


  3. I too suffer from occasional crippling bouts of writers’ block, but am sorry to hear yours is due to unrelenting pain. I have my own maladies resulting from now being a senior citizen, which isn’t fun, but we must continue to live the best lives we can, finding joy in the little things like you have noted.

    Liked by 1 person

  4. Nice to hear from you again, Dan! Sorry about the hands, I guess there’s nothing for it but to do less typing more frequently. Hang in there, buddy!


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